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16 October 2013

Funding success for PAMIS

University of Dundee-based charity PAMIS has received almost £200,000 to train family carers in using technology to support people with profound and multiple learning disabilities (PMLD).

The Alliance (Health and Social Care Alliance Scotland) awarded a grant of £197,782 for the PAMIS team to implement their Manage IT project over the next two years. The project will help equip family members with the skills and knowledge required to support those in their care by using the latest technology.

In addition to the training for carers, the funding will enable PAMIS to recruit three members of staff and develop software and apps for the project. Manage IT software will integrate a variety of information in one place in order to help carers manage their daughters and sons conditions and obtain direct support from health and social care services.

'We are very grateful for this generous funding,' said PAMIS Chief Executive Loretto Lambe. 'The Alliance recognises that people with such complex disabilities cannot self-manage their own conditions but accept their family carers, as their welfare guardians can do so on their behalf.

'The Manage IT project will enable family carers to plan care for their daughter or son much more efficiently, and improve communication with health and social care services. For example, they will be able to use technology to track or manage the long term conditions of the person they care for including polypharmacy, hospital admissions, consultations and caring at home.'

The Alliance is a national third-sector intermediary for a range of health and social care organisations. It has nearly 400 members including large, national support providers as well as small, local volunteer-led groups and people who are disabled, living with long term conditions or providing unpaid care.

PAMIS is the only organisation in Scotland that works solely with people with profound and multiple learning disabilities. They provide a range of services and projects including Family Support Service, Information & Library services and campaigns for equity in services for people with profound and complex disabilities.

People with PMLD and their families face many barriers to accessing and participating in the community, and PAMIS works on a number of fronts to enable inclusion and improve their quality of life.

The organisation's priority is to provide support to family carers, carried out by 5 dedicated Family Support Services, which cover 14 local authority areas. Additional intensive support is also provided to family carers through the difficult and often stressful period of transition from child to adult services.

PAMIS has worked closely with the Scottish Government on the development of policy and practice. This work includes representation on government committees, responding to consultation exercises, and campaigning on key issues.

More information is available at www.pamis.org.uk


For media enquiries contact:
Grant Hill
Press Officer
University of Dundee
Nethergate, Dundee, DD1 4HN
TEL: 01382 384768
E-MAIL: g.hill@dundee.ac.uk
MOBILE: 07854 953277